PROJECTS
We are currently exploring various ideas and projects to raise funds for research by www.biozentrum.unibas.ch/research/technology-ventures/lama2-md
Meanwhile we would like to thank the following organisations for their help or donations
Lucas design, Giubiasco
Tipografia Verbano, Muralto
Amis da la forchéta (amisdalaforcheta.ch), Ascona
Municipio Comune di Losone
and many private donors who wish to remain anonymous.
Donations to charitable organisations are tax-deductible in most CH-cantons.
Emily's Future is Now aims, on a non-profit basis, to:
Identify and disseminate information about the genetic disease merosin-deficient muscular dystrophy LAMA2-CMD.
Raise awareness and gain the attention and support of the general public through long-term information campaigns.
Organise events, rallies or other projects to raise funds for the association.
Allocate the funds raised to scientific research, in particular to the BIOZENTRUM at the University of Basel and more specifically to the start-up company SEAL Therapeutics AG www.biozentrum.unibas.ch/research/technology-ventures/overview-3 .
To attract the attention of pharmaceutical companies to stimulate research to find and develop a cure for patients with LAMA2-CMD.
Promote the social integration of LAMA2-CMD patients
To exchange information with other European and worldwide LAMA2-CMD merosin muscular dystrophy deficiency associations.